Amyotrophic Lateral Sclerosis Assn
1300 Wilson Blvd Ste 600, Arlington, VA · IRS data through FY2025
Revenue, expenses and net assets
Revenue Expenses Net assets
| Tax year | Revenue | Expenses | Net assets |
|---|---|---|---|
| FY2025 | $20,939,101 | $26,026,684 | $85,316,837 |
| FY2024 | $126,450,238 | $98,839,577 | $98,132,226 |
| FY2023 | $55,567,608 | $84,199,819 | $64,234,465 |
| FY2022 | $39,792,803 | $44,852,298 | $91,089,833 |
| FY2021 | $35,112,517 | $38,436,196 | $93,069,685 |
| FY2020 | $37,031,804 | $41,808,503 | $90,196,292 |
| FY2019 | $27,065,702 | $34,890,213 | $90,438,715 |
| FY2018 | $24,669,735 | $37,818,211 | $96,447,890 |
| FY2017 | $30,879,067 | $34,974,730 | $104,468,596 |
| FY2016 | $25,645,150 | $35,461,862 | $106,041,180 |
| FY2015 | $138,340,559 | $39,122,372 | $119,760,116 |
| FY2014 | $24,030,687 | $21,164,365 | $20,400,390 |
| FY2013 | $19,690,252 | $19,796,581 | $17,502,194 |
| FY2012 | $19,758,826 | $15,824,207 | $17,495,383 |
Form 990 filings
The returns filed by Amyotrophic Lateral Sclerosis Assn (EIN 13-3271855), including Form 990 PDFs and e-file data by year, are available in ProPublica's Nonprofit Explorer. The figures on this page come from IRS data files built from those returns.
Where the revenue came from
| Source | Amount | % of revenue |
|---|---|---|
| Contributions & grants | $20,291,104 | 97% |
| Program service revenue | $0 | 0% |
| Other revenue | $647,997 | 3% |
Where the money was spent
| Category | Amount | % of expenses |
|---|---|---|
| Program services | $17,553,332 | 67% |
| Management & general | $2,032,093 | 8% |
| Fundraising | $6,441,259 | 25% |
What the numbers show
- Contributions & grants made up 97% of total revenue in FY2025.
- Program services accounted for 67% of functional expenses, management & general 8%, and fundraising 25%.
- 67% of functional expenses went to program services in FY2025. That is higher than 6.2% of 257 Voluntary Health Associations & Medical Disciplines organizations nationwide (too few in VA for a state comparison).
- Net assets covered about 39.3 months of expenses at the end of the reporting year. That puts it in the 81st percentile among 175 Voluntary Health Associations & Medical Disciplines organizations in VA.
- Total revenue was higher than 97.2% of 177 Voluntary Health Associations & Medical Disciplines organizations in VA.
- Total revenue rose from $19,758,826 in FY2012 to $20,939,101 in FY2025. Revenue increased in 8 and decreased in 5 of 13 year-over-year comparisons.
- Expenses exceeded revenue in 10 of 14 reported years (FY2013, FY2016, FY2017, FY2018, FY2019, FY2020, FY2021, FY2022, FY2023, FY2025).
- The highest revenue on record here is $138,340,559 in FY2015.
- Net assets grew from $17,495,383 to $85,316,837 between FY2012 and FY2025.
- Listed in the IRS Publication 78 data as a central organization with a group exemption; its subordinate units may also be eligible.
Figures compared against other organizations of the same NTEE program area in the same state. See the methodology page for how these are calculated and the guide to reading nonprofit financials for their limits.
About this organization
LEADING THE FIGHT TO CURE AND TREAT ALS THROUGH RESEARCH, ADVOCACY AND CARE SERVICES.
IRS status
| Ruling year | 1990 |
| Subsection | 501(c)(3) |
| Classification | Public charity |
| Program area (NTEE) | G500 — Voluntary Health Associations & Medical Disciplines |
| Donations | Listed in the IRS Publication 78 data as a central organization with a group exemption; its subordinate units may also be eligible. |
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Source: Internal Revenue Service — Exempt Organizations Business Master File (downloaded November 4, 2026), Statistics of Income extracts, Form 990 e-file data, Publication 78 and the Automatic Revocation list. Figures are as reported by the organization; IRS processing may adjust them. This is not a charity rating and not tax advice. Confirm deductibility in IRS Tax Exempt Organization Search.
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