CYSTIC FIBROSIS FOUNDATION
4550 MONTGOMERY AVESTE 1100 N, BETHESDA, MD · IRS data through FY2024
Revenue, expenses and net assets
Revenue Expenses Net assets
| Tax year | Revenue | Expenses | Net assets |
|---|---|---|---|
| FY2024 | $355,798,320 | $439,138,919 | $4,693,624,506 |
| FY2023 | $292,016,280 | $443,404,599 | $4,592,956,300 |
| FY2022 | $248,630,352 | $396,664,114 | $4,443,719,016 |
| FY2021 | $417,237,551 | $375,611,186 | $5,416,630,309 |
| FY2020 | $800,629,953 | $381,380,991 | $5,098,993,014 |
| FY2019 | $605,778,425 | $348,650,099 | $4,236,708,832 |
| FY2018 | $275,790,756 | $337,912,568 | $3,775,363,472 |
| FY2017 | $275,482,021 | $292,766,690 | $4,194,186,065 |
| FY2016 | $192,528,975 | $299,650,531 | $3,732,155,178 |
| FY2015 | $148,459,096 | $192,986,761 | $3,679,424,528 |
| FY2013 | $297,690,483 | $75,047,721 | $597,765,846 |
| FY2012 | $260,818,976 | $79,288,914 | $350,629,883 |
| FY2011 | $136,580,184 | $125,721,614 | $175,448,915 |
Where the revenue came from
| Source | Amount | % of revenue |
|---|---|---|
| Contributions & grants | $95,892,260 | 97% |
| Program service revenue | $3,272,736 | 3% |
Where the money was spent
| Category | Amount | % of expenses |
|---|---|---|
| Program services | $346,709,365 | 79% |
| Management & general | $57,319,385 | 13% |
| Fundraising | $35,110,169 | 8% |
What the numbers show
- Contributions & grants made up 97% of total revenue in FY2024.
- Program services accounted for 79% of functional expenses, management & general 13%, and fundraising 8%.
- 79% of functional expenses went to program services in FY2024. That is higher than 31.5% of 257 Voluntary Health Associations & Medical Disciplines organizations nationwide (too few in MD for a state comparison).
- Net assets covered about 128.3 months of expenses at the end of the reporting year. That puts it in the 94th percentile among 125 Voluntary Health Associations & Medical Disciplines organizations in MD.
- Total revenue was higher than 100.8% of 132 Voluntary Health Associations & Medical Disciplines organizations in MD.
- Total revenue rose from $136,580,184 in FY2011 to $355,798,320 in FY2024, Revenue increased in 9 and decreased in 3 of 12 year-over-year comparisons.
- Expenses exceeded revenue in 7 of 13 reported years (FY2015, FY2016, FY2017, FY2018, FY2022, FY2023, FY2024).
- The highest revenue on record here is $800,629,953 in FY2020.
- Net assets grew from $175,448,915 to $4,693,624,506 between FY2011 and FY2024.
- Contributions and grants made up 74% of revenue in FY2011 and 27% in FY2024.
- Donations are generally tax-deductible (public charity).
Figures compared against other organizations of the same NTEE program area in the same state. See the methodology page for how these are calculated and the guide to reading nonprofit financials for their limits.
About this organization
TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.
IRS status
| Ruling year | 1957 |
| Subsection | 501(c)(3) |
| Classification | Public charity |
| Program area (NTEE) | G200 — Voluntary Health Associations & Medical Disciplines |
| Donations | Donations are generally tax-deductible (public charity). |
Source: Internal Revenue Service — Exempt Organizations Business Master File (downloaded September 20, 2026), Statistics of Income extracts, Form 990 e-file data, Publication 78 and the Automatic Revocation list. Figures are as reported by the organization; IRS processing may adjust them. This is not a charity rating and not tax advice. Confirm deductibility in IRS Tax Exempt Organization Search.
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