Cystic Fibrosis Foundation
4550 Montgomery Aveste 1100 N, Bethesda, MD · IRS data through FY2024
Revenue, expenses and net assets
Revenue Expenses Net assets
| Tax year | Revenue | Expenses | Net assets |
|---|---|---|---|
| FY2024 | $355,798,320 | $439,138,919 | $4,693,624,506 |
| FY2023 | $292,016,280 | $443,404,599 | $4,592,956,300 |
| FY2022 | $248,630,352 | $396,664,114 | $4,443,719,016 |
| FY2021 | $417,237,551 | $375,611,186 | $5,416,630,309 |
| FY2020 | $800,629,953 | $381,380,991 | $5,098,993,014 |
| FY2019 | $605,778,425 | $348,650,099 | $4,236,708,832 |
| FY2018 | $275,790,756 | $337,912,568 | $3,775,363,472 |
| FY2017 | $275,482,021 | $292,766,690 | $4,194,186,065 |
| FY2016 | $192,528,975 | $299,650,531 | $3,732,155,178 |
| FY2015 | $148,459,096 | $192,986,761 | $3,679,424,528 |
| FY2013 | $297,690,483 | $75,047,721 | $597,765,846 |
| FY2012 | $260,818,976 | $79,288,914 | $350,629,883 |
| FY2011 | $136,580,184 | $125,721,614 | $175,448,915 |
Form 990 filings
The returns filed by Cystic Fibrosis Foundation (EIN 13-1930701), including Form 990 PDFs and e-file data by year, are available in ProPublica's Nonprofit Explorer. The figures on this page come from IRS data files built from those returns.
Where the revenue came from
| Source | Amount | % of revenue |
|---|---|---|
| Contributions & grants | $95,892,260 | 27% |
| Program service revenue | $3,272,736 | 1% |
| Other revenue | $256,633,324 | 72% |
Where the money was spent
| Category | Amount | % of expenses |
|---|---|---|
| Program services | $346,709,365 | 79% |
| Management & general | $57,319,385 | 13% |
| Fundraising | $35,110,169 | 8% |
What the numbers show
- Other revenue made up 72% of total revenue in FY2024.
- Program services accounted for 79% of functional expenses, management & general 13%, and fundraising 8%.
- 79% of functional expenses went to program services in FY2024. That is higher than 31.9% of 257 Voluntary Health Associations & Medical Disciplines organizations nationwide (too few in MD for a state comparison).
- Net assets covered about 128.3 months of expenses at the end of the reporting year. That puts it in the 94th percentile among 124 Voluntary Health Associations & Medical Disciplines organizations in MD.
- Total revenue was the highest among 131 Voluntary Health Associations & Medical Disciplines organizations in MD.
- Total revenue rose from $136,580,184 in FY2011 to $355,798,320 in FY2024. Revenue increased in 9 and decreased in 3 of 12 year-over-year comparisons.
- Expenses exceeded revenue in 7 of 13 reported years (FY2015, FY2016, FY2017, FY2018, FY2022, FY2023, FY2024).
- The highest revenue on record here is $800,629,953 in FY2020.
- Net assets grew from $175,448,915 to $4,693,624,506 between FY2011 and FY2024.
- Contributions and grants made up 74% of revenue in FY2011 and 27% in FY2024.
- Listed in the IRS Publication 78 data as eligible to receive tax-deductible contributions (public charity).
Figures compared against other organizations of the same NTEE program area in the same state. See the methodology page for how these are calculated and the guide to reading nonprofit financials for their limits.
About this organization
TO CURE CF AND PROVIDE ALL PEOPLE WITH CF THE OPPORTUNITY TO LEAD LONG, FULFILLING LIVES BY FUNDING RESEARCH AND DRUG DEVELOPMENT, PARTNERING WITH THE CF COMMUNITY, AND ADVANCING HIGH-QUALITY, SPECIALIZED CARE.
IRS status
| Ruling year | 1957 |
| Subsection | 501(c)(3) |
| Classification | Public charity |
| Program area (NTEE) | G200 — Voluntary Health Associations & Medical Disciplines |
| Donations | Listed in the IRS Publication 78 data as eligible to receive tax-deductible contributions (public charity). |
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Source: Internal Revenue Service — Exempt Organizations Business Master File (downloaded November 4, 2026), Statistics of Income extracts, Form 990 e-file data, Publication 78 and the Automatic Revocation list. Figures are as reported by the organization; IRS processing may adjust them. This is not a charity rating and not tax advice. Confirm deductibility in IRS Tax Exempt Organization Search.
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