National Organization for Rare Disorders Inc
7 Kenosia Avenue, Danbury, CT · IRS data through FY2025
Revenue, expenses and net assets
Revenue Expenses Net assets
| Tax year | Revenue | Expenses | Net assets |
|---|---|---|---|
| FY2025 | $34,577,196 | $40,401,111 | $63,632,089 |
| FY2024 | $50,676,798 | $43,034,462 | $68,575,937 |
| FY2023 | $66,397,453 | $52,832,739 | $60,621,443 |
| FY2022 | $59,872,383 | $48,420,739 | $46,304,541 |
| FY2021 | $43,188,172 | $57,720,517 | $34,941,697 |
| FY2020 | $42,843,360 | $52,712,119 | $49,567,652 |
| FY2019 | $52,413,377 | $41,789,694 | $59,419,323 |
| FY2018 | $47,123,099 | $34,074,818 | $48,710,640 |
| FY2017 | $48,131,131 | $32,990,742 | $35,662,359 |
| FY2016 | $38,228,332 | $28,741,148 | $20,476,522 |
| FY2015 | $20,448,445 | $19,549,729 | $10,984,239 |
| FY2014 | $27,567,898 | $23,227,752 | $10,100,343 |
| FY2013 | $16,524,222 | $17,285,806 | $6,332,653 |
| FY2012 | $10,568,516 | $15,621,934 | $7,099,122 |
Form 990 filings
The returns filed by National Organization for Rare Disorders Inc (EIN 13-3223946), including Form 990 PDFs and e-file data by year, are available in ProPublica's Nonprofit Explorer. The figures on this page come from IRS data files built from those returns.
Where the revenue came from
| Source | Amount | % of revenue |
|---|---|---|
| Contributions & grants | $23,944,805 | 69% |
| Program service revenue | $7,935,317 | 23% |
| Other revenue | $2,697,074 | 8% |
Where the money was spent
| Category | Amount | % of expenses |
|---|---|---|
| Program services | $32,777,209 | 81% |
| Management & general | $3,918,660 | 10% |
| Fundraising | $3,705,242 | 9% |
What the numbers show
- Contributions & grants made up 69% of total revenue in FY2025.
- Program services accounted for 81% of functional expenses, management & general 10%, and fundraising 9%.
- 81% of functional expenses went to program services in FY2025.
- Net assets covered about 18.9 months of expenses at the end of the reporting year.
- Total revenue rose from $10,568,516 in FY2012 to $34,577,196 in FY2025. Revenue increased in 8 and decreased in 5 of 13 year-over-year comparisons.
- Expenses exceeded revenue in 5 of 14 reported years (FY2012, FY2013, FY2020, FY2021, FY2025).
- The highest revenue on record here is $66,397,453 in FY2023.
- Net assets grew from $7,099,122 to $63,632,089 between FY2012 and FY2025.
- Contributions and grants made up 79% of revenue in FY2012 and 69% in FY2025.
- Listed in the IRS Publication 78 data as eligible to receive tax-deductible contributions (public charity).
Figures compared against other organizations of the same NTEE program area in the same state. See the methodology page for how these are calculated and the guide to reading nonprofit financials for their limits.
About this organization
NORD STRIVES TO IMPROVE THE HEALTH AND WELL-BEING OF PEOPLE WITH RARE DISEASES BY DRIVING ADVANCES IN CARE, RESEARCH, AND POLICY.
IRS status
| Ruling year | 1989 |
| Subsection | 501(c)(3) |
| Classification | Public charity |
| Donations | Listed in the IRS Publication 78 data as eligible to receive tax-deductible contributions (public charity). |
Source: Internal Revenue Service — Exempt Organizations Business Master File (downloaded November 4, 2026), Statistics of Income extracts, Form 990 e-file data, Publication 78 and the Automatic Revocation list. Figures are as reported by the organization; IRS processing may adjust them. This is not a charity rating and not tax advice. Confirm deductibility in IRS Tax Exempt Organization Search.
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